Things have been crazy busy around here. We've had all 8 children get sick. Then they all saw the doctor, all got on antibiotics, all got better. Micah ended up with temporary arthritis due to strep. I didn't even know that was possible. We were nervous it was cancer. Doctor was worried too. Thank God for strep!
Then just as we were all over the sickness and starting back to normal Misha's pharmacy, Optium RX, refused to send him his life sustaining medication. After missing one dose he went into adrenal crisis and we ended up at the ER. We were livid at the pharmacy! The insurance didn't pay their portion from the previous month so they put the account on hold and refused to do anything more. We would have paid for it. We would have done anything! We now are filing complaints everywhere we can. Our kid almost died due to their negligence. After that we spent days fighting to get him his meds. It was all very traumatic and I'm still extremely upset by it.
Good news on Noah, he was approved by our secondary insurance (not UHC) for his medical bed. UHC refused to approve the bed but approved the canopy for it. What would I put it on? Lol. Anyways, we are super excited to get his bed. We should have it in 10 days. We bought him a new sheet set and can't wait until we can finally sleep easy knowing he is safe in his room. So grateful!!
Micah has been such a great kid lately. He is loving life. Happy. Expressive. He is talking and carrying on conversations. He is kissing everyone. I wonder if his stomach is healing and he is feeling better? He is on a lower dose of his behavioral meds so that can't be it. I'm beyond thrilled to finally have my kid! He was so fearful when he came to us. He was a child who was neglected and abused and had to fight to live. Now he can be free, play, love, has food, shelter, love and is thriving from it.
I guess we can't talk about the family without bringing up Judah. He isn't doing well in any aspects. He is self abusing again. He lost 3lbs recently. He is refusing to communicate. He really does so well in an institionsl setting but not in a family setting. It is very hard to parent him. He acts as though he doesn't want to live. We are now seeing a metabolic geneticist to try to figure out reason, weight loss, etc. he has almost all the symptoms for a mitochondrial disorder so we have to get that checked. We also will most likely be getting a gtube. I think that would really take some of the pressure off.
Trinity turned 14! I can't believe it. Noah turned 5! Sarie will be 8 in a couple days! Everyone is growing up. Things are busy but good. God is good.
Be blessed
